Support for patients and their caregivers
Are you living with Parkinson’s disease or caring for someone who is? For patients and their families, there are many advocacy groups and websites offering information, resources and support. Here are a few of the organizations active in the Parkinson’s community:
The American Parkinson Disease Association
(APDA) is the largest grassroots network dedicated to fighting Parkinson’s disease (PD) and works tirelessly to assist those with PD live life to the fullest in the face of this chronic, neurological disorder. APDA provides support nationally through its network of Chapters and Information & Referral (I&R) Centers, as well as a national Research Program and Centers for Advanced Research.
PHONE: (800) 223-2732
The Davis Phinney Foundation
is committed to supporting programs and research that deliver inspiration, information, and tools that will enable people living with Parkinson’s to take more control in managing their disease.
PHONE: (866) 358-0285
The Michael J. Fox Foundation
is dedicated to finding a cure for Parkinson’s disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson’s today.
PHONE: (800) 708-7644
For over half a century, the Parkinson’s Foundation
(PF) has focused on meeting the needs in the care and treatment of people with Parkinson’s disease. PF’s mission is to improve the quality of care through research, education and outreach. Today, PF has created a global network serving the needs of the Parkinson’s community.
PHONE: (800) 473-4636
Support for Rett syndrome patients and their caregivers
Are you living with Rett syndrome or caring for someone who is? For patients and their families, the Rettsyndrome.org website offers information, resources and support:
Rettsyndrome.org is one of the leading private funders of Rett syndrome research. The organization hosts the largest global gathering of Rett researchers and clinicians to establish research direction for the future. The mission of the organization is to accelerate the full spectrum research to cure Rett syndrome and empower families with information, knowledge and connectivity.
PHONE: (800) 818-7388